It’s no secret that disability in the media is often represented a certain way, whether this be in a film, TV show or documentary I can’t help but think it’s often used as an inspiration, if disability is ever represented … Continue reading
November. Most people think Bonfire Night, I think Birthdays. My Birthday. This year I turn 25- some people reading this will probably think ‘so young, she has a lot to learn’ but I think ‘oh god, do I have to … Continue reading
I have to be mindful in this post to make sure that the feminist affirming tones of Beyonce’s Run the World (Girls) that’s currently playing at volume doesn’t taint this post and make it sound like I’m man bashing because … Continue reading
I really wanted the post where I announced my entry into employment to be a positive blog post as it’s everything I wanted since age 16 (with maybe the odd grumble about the Access to Work scheme) but this post … Continue reading
The media, it’s everywhere. Media plays such a big part in today’s society but what is it? Why does it exist? Now without going all academic, the role of media is to represent society and share information so why as … Continue reading
Writing this blog and the way I live my life I always try to maintain a positive (but honest) attitude towards my disability and how I react to the world around me, however sometimes this is hard, really hard. Without … Continue reading
It’s been a little while since I blogged about care but now that I am involved in the running of a Peer-Support group for individual employers and personal care assistants and with the next general election fast approaching, now is as good a time as any to talk about the importance of receiving the right care and support and why more cuts to social care services will be so detrimental…
The very first thing I must say before anything is that the views raised in the post are strictly my own.
For just over two years I have ran my own care team and that in itself comes with a whole array of challenges but before that care and being supported to live independently was a whole different story.
Like many people that receive care provided by local authorities I used domiciliary care agencies, for those who are unfamiliar, these are agencies that go round to your home and provide care, this is done in allotted time and usually made up multiple short shifts a day. Without boring everyone with the details, these agencies didn’t suit me. Same story of carers not turning up, being rushed, carers being late and my bedtime around 9pm. Not fun.
In a last ditch attempt, I joined another agency, one that you gave you your own dedicated care team, no more short shifts- sounded like bliss. This agency didn’t fit me either. My carers were lovely but management were hell, actual hell. What started off as an ideal solution ended up being a nightmare. I was bullied, treated like I was just a money ticket. I wasn’t a person I was price. My ride on the hell train came to an abrupt end after 8 months and literally overnight I set up my own care team.
I’m not writing this for sympathy, but during these 8 months I was diagnosed with depression and anxiety. I’ll be first to say that until this ordeal I had no real idea what depression or anxiety even meant, like most I was a little ignorant. Obviously I can’t say a complete sweeping statement and say ‘This agency gave me depression’ but it certainly contributed.
What I’m really trying to get at is that finding the right care doesn’t just impact someone physically it can impact them emotionally too. I may not ever be totally cured of my anxiety disorder (you know it’s a bit of a deep rooted issue) but now I’m free from harm.
Stories like this one unfortunately aren’t uncommon but with the cuts that will be happening to social care services they are unlikely to stop. And the scariest thing for me? Cuts to social care mean cuts to independence. So before some big politician says the money is running out to fund disabled people’s care I would say there is and should be no price on independence
Half of the reason for writing this post maybe because I’m secretly hoping that if I procrastinate enough the big pile of work I have to do will disappear, (ever the optimist) but lately things that I’ve read and felt … Continue reading
This promo post is a little different one, because it’s a film and two, it’s not a typical film review, (at least I don’t think so anyway). This weekend I saw the film ‘The Theory of Everything.’ For those that … Continue reading
I know I spend a lot of my blog and time advocating for disabled people to live independently but let me tell you, sometimes this is hard. Really hard. I always had this idea that I would go to uni to study Media and then I would go and get a job in advertising or music promotion but that hasn’t exactly happened.